Black Canada Talking™ is a live online event that provides Black Canadians opportunity to give their takes and POVs on stories that are of importance to them.
Our guest on April 18, 2021 episode of Black Canada Talking™ was Ulysse Guerrier.
Ulysse Guerrier was born in Toronto and Raised in Montreal. He was diagnosed with Sickle Cell S-Beta Thalassemia at the age of 2 years old. He started volunteering for The Canadian Sickle Cell Society at the age of 16 and eventually became a board member at 18 years old. He is very involved in the Sickle Cell Community in Montreal and Toronto and hopefully one day around the world. Formerly he was the Project Coordinator of the Sickle Cell Program at TAIBU Community Health Centre. Ulysse, a Sickle Cell activist, also started a YouTube channel called Our Sickle Life where he captures moments of life and the struggle of living with Sickle Cell Disease. He is a past board member of the SCDAC. Currently, Ulysse is the Director of Patient Support of the Sickle Cell Association of Ontario and Co-founder of UJIMA Sickle Cell Emergency Fund.
During our conversation, Ulysse talked about:
– Some of his background and growing up with sickle cell disease and what sickle cell disease is and becoming a case study for sickle cell disease.
– Becoming a board member at the Canadian Sickle Cell Society at the age of 16
– Moving to Toronto, working with the Sickle Cell Association of Ontario and the passing of his brother due to sickle cell
– Staying silent when struggling with sickle cell and the importance of speaking up about mental and physical health
– The process of getting screened for sickle cell disease, his diagnosis of sickle cell disease and the pain he deals with on a day-to-day basis
– How he uses his diagnosis to help other people, and gives advice to young sickle cells patients
– The process of treating a sickle cell crisis, and how important it is for all hospitals to have an implemented plan to deal with sickle cells patients
– The difficulty Black men go through who sickle cell disease
– How the COVID pandemic affects living with sickle cell disease.
You can contact Ulysse via:
Sickle Cell Association of Ontario
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God bless, peace, be well and keep the faith,
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